Wednesday, November 17, 2010


I'm about to sit down with a piece of chocolate, & a cup of coffee...


Tuesday, November 16, 2010

Check up...

Went off to get a check up today with the ol' Lupus Specialist.

Platelets still pretty low. Kind of disappointed that they hadn't changed. But not low enough to warrant meds. Phew. Next step prednisone...last step spleen out. I'm nowhere close of either of those yet.

Busy day. Weary weary...just navigating my way around the hospital is hectic. Heading in next week for an should help my bones for about a year. That will save taking super strong drugs once a week (which I haven't actually been taking)...

I'd lost my forms, so after seeing the Dr today I went straight to the chemist to order the meds & phoned ambulatory care STRAIGHT AWAY before I had a chance to lose these there's no turning back now...

Friday, November 12, 2010


Superboy's BEST friend is moving to Perth!

Yesterday he didn't seem bothered. Then I pointed out where Perth was on a map. This morning there were tears. Poor little guy.

Feeling teary myself...but I think that's PMT...

Wednesday, November 10, 2010

Breathe...Friday is nearly here...

I've been marking exams for the last two days. By this afternoon I HAD to go out to buy chocolate (ie: "the teacher's lifesaver when hitting a marking slump") I have two late paper's tomorrow THEN I AM DONE...until next week.

The Drama Queen has been fairly patient with me...but she herself has exams so I have been trying to help her study & not snap at her when she asks me to spell something for the 50th time & I lose my train of thought...I just realised she had swimming this afternoon at school & I didn't even ask her how it went. *Forehead slap* - bad mother, bad mother...

Superboy is on edge too because he's so tired. I haven't been getting them into bed as early as I should. Tonight they had cheese on toast because it was nearly time for bed & I realised that pasta AGAIN probably would have caused much complaint! This afternoon he severely reprimanded me because I had taken all his toy puppies.
Me: Yes, I thought I would put them into the wash because they needed a bath
SB: Mum, you should have TOLD me you were going to do that!!!
Me: Well you were at school!
SB: Well, you should have told me BEFORE school!

Sing along with that song "I'm walkin' on sunshine, woh" but change the words to "I'm walkin' on eggshells" & you'll have this house.

D recovering. They are exploring GVH in his lungs now. Lots more medicine back onto our draw in the bedroom again...but as I said to a friend this afternoon - we have a house, we have each other, D is still here. We might be in debt & still be paying off Christmas laybuys, & we might just have chicken sandwiches for Christmas lunch but there is lots of love here!

I've washed up, nearly finished packing's after 11pm. I might crawl into bed....zzzzzzzzzzzz

You'd better not shout, better not cry...

only 7 weeks to go...???

Wednesday, November 3, 2010


Superboy (with a freshly painted tiger face) & his mate Master Chef!